Registered charity
number 1146355

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Living with Duchenne

Discussion or useful information for anyone living with Duchenne and their family, including DLA, Statements, Carers, Holidays, Adaptations etc.

New airport facilities
By Paulfitz on March 03, 2015
15 24

General Chat

10 27

Fundraising

Fundraising ideas, events, hints, tips, websites and useful information

FB page
By Paulfitz on September 01, 2014
6 12

Research

Up to date trial and research information, world-wide research news, new trials

DUCHENNE ALLIANCE MEETING / SAREPTA
By Manchester Tony on March 28, 2014
6 15

Please note that the opinions expressed on our Message Board are personal views and not the views of Duchenne Now.

Support & Advice

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Supplements and medications

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Adaptations

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Educational needs and benefits

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Wheelchairs and equipment

Fundraising

Every single penny raised for Duchenne Now will go to fund Duchenne research. How will you help?  Click here for more info

Membership

Donating regularly by standing order is one of the best ways in which you can become a part of and support the work of Duchenne Now.  Click here for more info

Events

We hold plenty of events to raise money to fund research. Why not join us at the next one to show your support?  View our calendar