Registered charity
number 1146355

All Blog Posts

Serviceland By Vici Richardson

Submitted by Esther on Fri 18th Oct 2013

A different way of looking at things...

Read more

Blog by Paul Fitzpatrick

Submitted by Esther on Tue 24th Sep 2013

The Duchenne Community is still coming to terms with and digest the implications of the news a couple of days ago from GSK/Prosensa regarding : “GSK and Prosensa Announce Primary Endpoint Not Met in Phase III Study of Drisapersen in Patients With Duchenne Muscular Dystrophy”

Read more

Cruising, is it for me? By Paul Fitzpatrick, Parent and Chair of Duchenne Now

Submitted by Esther on Mon 19th Aug 2013

Finding the right holiday is not always easy when our children get older and move into a wheelchair, flying can be difficult having to transfer onto planes, toileting once onboard and equipment needed once arriving at the destinations etc so a few years ago we started to search for alternatives.

Read more
RSS Icon

Support & Advice

View info

Supplements and medications

View info


View info

Educational needs and benefits

View info

Wheelchairs and equipment


Every single penny raised for Duchenne Now will go to fund Duchenne research. How will you help?  Click here for more info


Donating regularly by standing order is one of the best ways in which you can become a part of and support the work of Duchenne Now.  Click here for more info


We hold plenty of events to raise money to fund research. Why not join us at the next one to show your support?  View our calendar