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All Blog Posts

Serviceland By Vici Richardson

Submitted by Esther on Fri 18th Oct 2013

A different way of looking at things...

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Blog by Paul Fitzpatrick

Submitted by Esther on Tue 24th Sep 2013

The Duchenne Community is still coming to terms with and digest the implications of the news a couple of days ago from GSK/Prosensa regarding : “GSK and Prosensa Announce Primary Endpoint Not Met in Phase III Study of Drisapersen in Patients With Duchenne Muscular Dystrophy”

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Cruising, is it for me? By Paul Fitzpatrick, Parent and Chair of Duchenne Now

Submitted by Esther on Mon 19th Aug 2013

Finding the right holiday is not always easy when our children get older and move into a wheelchair, flying can be difficult having to transfer onto planes, toileting once onboard and equipment needed once arriving at the destinations etc so a few years ago we started to search for alternatives.

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Every single penny raised for Duchenne Now will go to fund Duchenne research. How will you help?  Click here for more info

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