Registered charity
number 1146355

Staff / Volunteers

Esther Derber 

 I have worked with some great people and families during this time. I would love to support and work with you with on any events or ideas. I am proud to be a part of a completely transparent charity making a difference to everybody living with Duchenne.

Tracy Levene

I work in the office helping send out merchandise, speaking to parents and any other tasks required. My career background before becoming a mum of 3 was admin and front of house.

I volunteer because my 8 year old son has Duchenne and I am determined to  make a difference by helping to find a treatment /cure for all living with Duchenne.


Claire Newman

My background is Customer Service, but I have been a stay at home Mum for the last six years. Now both my girls are in school I am able to offer time to come and work in the Duchenne Now office.

I love volunteering for Duchenne Now, it allows me to get back into work, whilst helping the most wonderful cause. My very close friends son Joey and my cousin Bradley suffers with DMD so it really is a cause close to my heart.   I am also a member of the Duchenne Now Ladies Committee and we have had put on a number of fundraising events to help raise money and awareness. 



Duchenne Now fundraising committee

Support & Advice

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Supplements and medications

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Educational needs and benefits

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Wheelchairs and equipment


Every single penny raised for Duchenne Now will go to fund Duchenne research. How will you help?  Click here for more info


Donating regularly by standing order is one of the best ways in which you can become a part of and support the work of Duchenne Now.  Click here for more info


We hold plenty of events to raise money to fund research. Why not join us at the next one to show your support?  View our calendar