Registered charity
number 1146355

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  • Duchenne Now

    Duchenne Now for all living with Duchenne. Making your £1 count. 100% of your donation goes towards trials and research.

  • Duchenne Now

    Duchenne Now - Your Charity, Your Goal, Your Voice

Recent news from Duchenne Now

Thank you to our friends at Eurosimm who organised a Bake Off to raise money for Duchenne Now.
Duchenne Charities Announce £120,000 funding for new research project to investigate cancer therapeutics as a treatment for Duchenne.
Duchenne Now are a proud partner in the Follistatin Gene Therapy Trial ..for more details please see our current research section
Huge thank you to Plas Coch Holiday Park for raising £2500 at the Races!
Good luck and thank you to every body taking part in fundraising events this month


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Duchenne Now is a registered charity (charity number 1146355) dedicated to finding and funding treatments and eventual cure for ALL living with Duchenne.

Duchenne Now launched in March 2012, with a fresh approach to achieving our goals. Your charity, Your Goal, Your Voice.

The Trustees of the Charity are all parents of children LIVING WITH DUCHENNE who know how important it is to progress with viable treatments until a cure is found. Between the trustees there is over 20 years of dedicated Duchenne charity experience.

Members of the board have strong relationships with key members of the international Duchenne community which includes charities, clinicians and researchers.

Find out more

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  • December 12th

    Did you see our post earlier about a survey we need your help with? We want to better understand how prescription…

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Every single penny raised for Duchenne Now will go to fund Duchenne research. How will you help?  Click here for more info


Donating regularly by standing order is one of the best ways in which you can become a part of and support the work of Duchenne Now.  Click here for more info


We hold plenty of events to raise money to fund research. Why not join us at the next one to show your support?  View our calendar