Welcome

Duchenne Now is a registered charity (charity number 1146355) dedicated to finding and funding treatments and eventual cure for ALL living with Duchenne.

Duchenne Now launched in March 2012, with a fresh approach to achieving our goals. Your charity, Your Goal, Your Voice.

The Trustees of the Charity are all parents of children LIVING WITH DUCHENNE who know how important it is to progress with viable treatments until a cure is found. Between the trustees there is over 20 years of dedicated Duchenne charity experience.

Members of the board have strong relationships with key members of the international Duchenne community which includes charities, clinicians and researchers.